Delays and missed symptoms creating barriers to dementia diagnosis
21 Sep 2026
The findings come from the Australian Institute of Health and Welfare’s (AIHW) Living with Dementia Survey, released on 21 September during Dementia Action Week. The survey provides new information about the experiences of people living with dementia and their carers.
The survey found that 61% of people living with dementia received a diagnosis within three years of first noticing symptoms. However, less than half received a diagnosis within one year.
Delays in getting tests and specialist appointments were among the main challenges reported during the diagnostic process. Some respondents also said their symptoms were initially linked to other health conditions, mental health issues, stress or normal ageing.
The AIHW found that delays in tests and specialist appointments were reported by 24% of women and 21% of men. GP attribution of symptoms to causes other than dementia was reported by 24% of women and 13% of men.
Other barriers can occur before a person seeks medical advice. Some respondents did not think their symptoms were related to dementia, while others were concerned about the consequences of receiving a diagnosis or were reluctant to accept the possibility.
Dr Stephanie Daly, Chair of RACGP Specific Interests Dementia, said a dementia diagnosis can help people understand their symptoms and support future planning.
She said health professionals should recognise the value of diagnosis rather than avoiding it because of concerns about its impact.
The AIHW survey found that many people felt a diagnosis helped explain their symptoms. It also helped some people with planning, decision-making and accessing therapies or support.
Dr Daly also stressed that dementia is not an inevitable part of ageing. Cognitive changes should be assessed to determine whether dementia or another health condition may be contributing to the symptoms.
The AIHW noted that there is no single test or pathway for diagnosing dementia. The process can involve cognitive and medical assessments and may include GPs, specialists or hospital services.
The survey also highlighted the impact on carers. Many carers reported significant time commitments while supporting people living with dementia.
The RACGP has called for continued investment in general practice and better integration of brain health into primary care.
AIHW estimates that about 459,000 Australians are living with dementia in 2026, with the number projected to reach close to 1.1 million by 2066.
Delays and missed symptoms creating barriers to dementia diagnosis
Source: Australian Institute of Health and Welfare (AIHW), Living with Dementia Survey: insights from Australians living with dementia; RACGP.