Free support available for neuroendocrine cancer patients\

Free support available for neuroendocrine cancer patients\

02 Oct 2024

The charity offers free specialist telephone support services to patients, and free resources and education to health professionals, including education modules, in-service training sessions, booklets and assistance with the Optimal Care Pathway navigation.

Neuroendocrine cancer (NET) is Australia’s seventh most diagnosed cancer, with more than 5,550 diagnosed annually and more than 25,550 living with the disease.

One in two patients report being initially misdiagnosed with something other than neuroendocrine cancer, and a correct diagnosis can take between five and seven years. Some 60 per cent of patients are Stage 4 when correctly diagnosed and are no longer curable.

The main NET symptoms include flushing, wheezing, diarrhoea, racing heart (palpitations) and fatigue.

 

 

The Optimal Care Pathway for neuroendocrine cancer enables health services to support improved outcomes for patients, direct resourcing to create equity in access and outcomes for all.

 

Learn more about NETs: