New Tool Supports Timely Paediatric Palliative Care Referrals
14 Oct 2025
The tool was developed as part of the Shaping the Future of Paediatric Palliative Care Project, funded by the Australian Government, and is a key action from the Paediatric Palliative Care National Action Plan.
An accompanying awareness campaign, Know the Right Time, encourages clinicians to reflect on when and how to make referrals that provide the best support from diagnosis through to end-of-life care.
PCA CEO Camilla Rowland said the tool was developed over 18 months in collaboration with families, paediatric palliative care specialists, and referring clinicians including neurologists, oncologists, cardiologists, and neonatologists.
“The tool supports reflective practice, helping clinicians assess a child’s medical condition, psychosocial context, and family needs to determine when referral is appropriate. Early involvement allows time for informed decisions, symptom management, sibling support, and greater choice – improving quality of life,” Ms Rowland said.
The tool emphasises that timely referral is not just about assessing illness stage but ensuring families receive the right support at the right time. Delayed referrals can limit access to critical care interventions and reduce support for families.
By 2027, it is estimated that 41,775 children and young people aged 0–21 years could benefit from paediatric palliative care services, highlighting the growing importance of timely referrals.
The Timely Referral Paediatric Palliative Care Decision-Making Guideline Tool is available for download in short and full versions here: PCA Resource.
Source: Palliative Care Australia, 2025.
